davis609
- Name: Robin
- Age: 44
- Gender: Female
- Location: PA US
| Total Posts | Last Post | Last Seen | Joined |
|---|---|---|---|
| 0 | 02/05/08 16:42:16 | 02/04/09 14:35:53 | 02/05/08 |
| Visitors Now | Visitors Today | Most Visits | Total Visits |
|---|---|---|---|
| 0 | 0 | 28 08/30/08 |
155 |
My favorite sites
Music I listen to
I like all kinds of music. Depends on my mood
TV shows I watch
Prison Break, Guiding light, House, American Idol, Survivor
About Spiderspun
Spiderspun is a web site created in 2000 by an Alpha-1
patient (Noreen) who links the blogs from other Alphas (via their permission or request) for the purpose of
raising awareness and support about their genetic condition, Alpha-1
Antitrypsin Deficiency.
My Bio
Now retired, I am a wife, sister of 2, mother of 3, and grandmother of 1. I was diagnosed with Alpha-1 in March 2005. I am
lung-affected with the PZ phenotype. My favorite movies are Ghost and Grease. I like all kinds of music. I enjoy knitting and crocheting. I
have 1 dog. My heritage is Heinz 57! 
My blog
-
Catch my breath
02/05/08 17:51:26 | 1 Comments
I first started to notice something was wrong in my early 20's I started to wake up in the middle of the night unable to catch my breath. Went to the Doctor and was wrongly diagnosed with asthma. Took about 15 years and a new Doctor to finally diagnose me with Alpha 1. I have a wonderful Husband,two beautiful daughters and a step son. I had 31% lung function at my last PFT and am currently taking spiriva, advair 50/250, albuterol as needed and weekly Zemaira infusions.
